Community Resources
In 2018, Pompe Alliance opened its doors to the Pompe community with the aim of providing essential services and support. Our goal is to empower individuals within the community to learn about the disease, advocate for themselves, and make informed decisions.
We are actively seeking to partner with rare disease patient-focused organizations, advocates, activists and institutions that seek to address mental health within rare disease communities.We are also seeking to connect disease-specific programs with dedicated sponsors.
Questions about Pompe Disease? Here are the most frequently asked questions.
Pompe Disease News, a Bionews brand, provides trusted information, news, and connections that help to empower the Pompe Disease community, fostering a space where hope thrives
Flu Resources
Every season there is a new flu. Click here for up to date information:
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We use the power of big data to connect patients with the right doctors and treatments faster. We are constantly analyzing every new piece of medical information for nearly every health condition from around the globe to identify what you need to make the most informed treatment decisions possible. Then we simplify that information so you can actually use it.