This privacy policy sets out how Pompe Alliance uses and protects any information that you give Pompe Alliance when you use this website.

Pompe Alliance is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website, you can be assured that it will only be used in accordance with this privacy statement.

Pompe Alliance will only use your information for the purposes of our newsletter and other mailings, and the mentoring program. Pompe Alliance will not give or sell your information to any third party.

Pompe Alliance may change this policy on occasion by updating this page. You should check this page from time to time to ensure that you are happy with any changes. This policy is effective from January 1, 2019.

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Information we may collect:

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• Name and age

• Contact information including email address

• Demographic information