FIND A POMPE CARE PROVIDER

Find physicians and other medical professionals who have worked with Pompe patients

FINDING A CARE PROVIDER

Because Pompe is a rare condition, care providers who have worked with Pompe patients are hard to come by. Getting the best care often means seeking out a professional with experience, which can be difficult to do if you don't know where to look or who to ask. Check out our list of states to see where these physicians and other medical professionals practice.

*Please Note: This list is for information purposes only. Pompe Alliance does not recommend or endorse any health care provider listed.*

SOUTH CENTRAL

UNITED STATES

SOUTHWESTERN

UNITED STATES

 

SEARCH ALPHABETICALLY BY STATE

A C D F G H I K L M N O P R S T U V W

STATES IN ALPHABETICAL ORDER

Alabama

No provider information for Alabama at this time.

Alaska

No provider information for Alaska at this time.

Arizona

 

Dr. Todd Levine - Neurology

5090 N 40th Street Ste 250

Phoenix, AZ 85018

(602)258-3354

Arkansas

No provider information for Arkansas at this time.

California

No provider information for California at this time.

Colorado

No provider information for Colorado at this time.

Connecticut

No provider information for Connecticut at this time.

Delaware

No provider information for Delaware at this time.

Florida

 

Dr. Arnaldo Isa - Neurology

301 N Maitland Ave

Maitland, FL 32751

(407)647-5996

Dr. Francisco Calimano - Internal Medicine 

1115 E Ridgewood Street

Orlando, FL 32803

(407)841-1100

Dr. Francis Fahey - Cardiology 

1925 Mizell Ave Ste 100

Winter Park, FL 32792

(407)894-4474

Georgia

No provider information for Georgia at this time.

Hawaii

No provider information for Hawaii at this time.

Idaho

No provider information for Idaho at this time.

Illinois

No provider information for Illinois at this time.

Indiana

No provider information for Indiana at this time.

Iowa

No provider information for Iowa at this time.

Kansas

No provider information for Kansas at this time.

Kentucky

No provider information for Kentucky at this time.

Louisiana

No provider information for Louisiana at this time.

Maine

No provider information for Maine at this time.

Maryland

Dr. Vinay Chaudhry - Neurology

601 N Caroline Street

Baltimore, MD 21287

(410)955-9167

Massachusetts

No provider information for Massachusetts at this time.

Michigan

Dr. David Stockton

3950 Beaubien St
Detroit, MI 48201

(313) 832-933

Andrea Amalfitano, DO, PhD

Interim Dean of the College of Osteopathic Medicine

Michigan State University

(517) 355-1855

Minnesota

No provider information for Minnesota at this time.

Mississippi

No provider information for Mississippi at this time.

Missouri

No provider information for Missouri at this time.

Montana

No provider information for Montana at this time.

Nebraska

No provider information for this Nebraska at this time.

Nevada

No provider information for Nebraska at this time.

New Hampshire

No provider information for New Hampshire at this time.

New Jersey

No provider information for New Jersey at this time.

New Mexico

No provider information for New Mexico at this time.

New York

 

Dr. Martin Bialer - Medical Genetics 

225 Community Drive

Great Neck, NY 11021

(516)918-4800

North Carolina

Dr. Priya Kishnani - Duke University

3000 Erwin Road

Durham, NC 27705

(919)684-2036

North Dakota

No provider information for North Dakota at this time.

Ohio

Dr. Hani Kushlaf - Neurology

222 Piedmont AVE

Cincinnati, OH 45219

(513)475-8730

 

Dr. Robert Hopkin - Medical Genetics

3333 Burnet Ave ML2011

Cincinnati, OH 45229

(513)636-4200

Dr. M. Faulx, Cardiology

9500 Euclid Ave

Cleveland, Ohio 44195

216-445-7212

 

Dr. A. Erwin, Genetics 

9500 Euclid Ave

Cleveland, Ohio 44195

216-444-9249

 

Dr. A. Lichtin, Oncology

9500 Euclid Ave

Cleveland, Ohio 44195

216-444-6833

 

Dr. L. Aboussouan, Pulmonary and Critical Care Medicine

9500 Euclid Ave

Cleveland, Ohio 44195

216-444-0420

 

Dr. R. Kuenzler, Neurology 

9500 Euclid Ave

Cleveland, Ohio 44195

216-444-7293

 

Dr. R. Figler, Orthopedics

9500 Euclid Ave

Cleveland, Ohio 44195

216-444-7512

 

Michelle Adessa, CCC-SLP, Speech-Language Pathologist

9500 Euclid Ave

Cleveland, Ohio 44195

216-445-9089

 

Dr. John Kissel - Neurology (Ohio State University)

2050 Kenny Road 7th Floor

Columbus, OH 43221

(614)293-4969

Dr. N. Steven Wilison, Dentist

16652 Chagrin Blvd

Shaker Heights, Ohio 44120

216-921-8888

Oklahoma

No provider information for Oklahoma at this time.

Oregon

No provider information for Oregon at this time.

Pennsylvania

No provider information for Pennsylvania at this time.

Rhode Island

No provider information for Rhode Island at this time.

South Carolina

No provider information for South Carolina at this time.

South Dakota

No provider information for South Dakota at this time.

Tennessee

 

Natalie Shallow NP

2200 Children's Way, 6th Floor

Nashville, TN 37232

(615)322-7601

Texas

 

Dr. Yessar Hussain - Neurology

3901 Medical Parkway Ste 300

Austin, TX 78756

(512)920-0140

Utah

No provider information for Utah at this time.

Vermont

No provider information for Vermont at this time.

Virginia

No provider information for Virginia at this time.

Washington (State)

No provider information for Washington State at this time.

Washington D.C.

No provider information for Washington D.C. at this time.

West Virginia

No provider information for West Virginia at this time.

Wisconsin

Dr. Michael Leone - Neurology

1836 South Ave

La Crosse, WI 54601

(608)782-7300

Wyoming

No provider information for Wyoming at this time.

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

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